Pierre Robin described a condition in 1923 that bears his name today. His description consisted of micrognathia, glossoptosis and breathing problems and he mentioned that children with severe micrognathia often did not survive beyond the age of 16-18 months.

However, there is considerable confusion with regard to the exact definition of this condition (Robin sequence, syndrome, phenomenon anomaly). Patients often have a cleft palate and associated malformations. Besides the breathing problems, patients often encounter feeding, speech, and hearing problems and failure to thrive. This description is still today associated with significant morbidity and even mortality.

The main objectives of this meeting are:

1. Get an update on research specific for Robin sequence
2. Get consensus about the definition used
3. Get units to start collaboration for future studies

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